|Thank You for Your Support|
We regret to inform you that the Coalition for Pulmonary Fibrosis is winding up its affairs and will be ceasing operations. We are pleased to have impacted greatly the national efforts to stop the disease, and we are deeply grateful to the thousands of individuals across the country who have collaborated with us and supported the fight to find a cure.
Those seeking information, assistance, and the opportunity to help bring change, please visit the website of the Pulmonary Fibrosis Foundation at PulmonaryFibrosis.org.
For additional information about the work of the CPF and the future of the effort, please read below:
COALITION FOR PULMONARY FIBROSIS
“To every thing there is a season, and
a time to every purpose under heaven.”
– Ecclesiastes 3:1
Dear Friend of the Coalition for Pulmonary Fibrosis –
Together with you and our committed supporters over the last 14 years, we have indeed changed the world in Pulmonary Fibrosis (PF). There is still much progress to be made, but the work we have done has improved research efforts, raised awareness of PF, increased funding for the disease and supported thousands upon thousands of patients and families.
The CPF has been steadfast in its mission, has achieved noteworthy results, and is deeply grateful to all those who have fought by the organization’s side.
Today marks a new day in the PF Community. The time has come to create one voice, one effort in the relatively small space and to allow energy and resources to become stronger than ever. Mindful of the greater good being sought, the CPF will fully support the efforts of the Pulmonary Fibrosis Foundation’s (PFF’s) efforts in the PF space, and will join alongside to unify efforts and strengthen our progress. This new, unified voice is one the PF community has long wanted and we are supportive of this consolidation of efforts.
With that in mind, the Board of Directors of the Coalition for Pulmonary Fibrosis believes the time is now right for the CPF to cease operations as an independent organization, which we expect will occur by the end of this year. Funds remaining after meeting closing costs and financial obligations will be donated to leading Pulmonary Fibrosis research organizations or appropriate nonprofit funds, foundations or corporations involved with the disease.
As we look to a great future, one that we believe will include the eradication of Pulmonary Fibrosis,, we look back at our history with pride and gratefulness to the PF community. Founded in 2001, the CPF virtually invented national advocacy on behalf of the fight to find answers, treatment, and a cure for PF. The CPF was the first to form national coalitions of the concerned — doctors and hospitals, researchers and research institutions, elected officials in the US Senate and House of Representatives, leading pharmaceutical corporations, national and local media outlets, compassionate volunteers and financial supporters, and tens of thousands of individual PF victims and their loved ones. The CPF has, with your help and support, supplied millions of dollars in research funds, held educational programs across the country, helped established multiple support groups and circulated the first comprehensive patient information brochure to tens of thousands of people across the nation and abroad.
On behalf of the CPF Board of Directors and our team, we thank the past and present leadership of InterMune. This pioneering pharmaceutical organization — now part of Genentech, a member of the Roche Group — helped support the CPF and its mission since day one. As we previously reported, we are thrilled that InterMune developed the first PF treatment drug, Esbriet, which is now being used both in the United States and abroad. (Their drug release was quickly followed by the release of Ofev by Boehringer Ingelheim.)
The CPF owes warm thanks to many others who have been instrumental in moving this cause forward. The National Heart Lung and Blood Institute (NHLBI), the U.S. Food and Drug Administration (FDA), The American Thoracic Society, thousands of researchers, hundreds of advocates, our founders and our staff. Additionally, countless individuals in multiple arenas across the country have helped increase the focus on PF.
Our research grant partnership with The American Thoracic Society, a critically important organization in this battle to stop PF, has helped make important advances in understanding this disease and we want to publicly affirm our gratitude for their commitment to the fight against lung diseases.
There are innumerable individuals who have made an important contribution to this work and we hope you will continue to support the PFF’s efforts moving forward. Though it is impossible to thank everyone, it’s important to recognize that none of our success would have been possible without the CPF’s members and volunteers…or without the heroic fight of all those patients who inspired the community. We encourage you to stay committed, and join many of our champions in helping to make what is now a more promising future into one where PF is but a memory.
Please accept our deepest thanks and warmest wishes,
Mishka Michon, CPF Chief Executive Officer