Nonprofit Partners & Boards

Caring Voice Coalition
Caring Voice Coalition (Caring Voice) is dedicated to building relationships with charitable organizations founded to help individuals and families affected by serious chronic disorders and diseases. Caring Voice will work together with these organizations to offer outreach and support services that directly benefit the patient community. Caring Voice will accomplish its mission through its public policy program, insurance counseling, personal advocacy and support, and person to person mentoring services; all with an emphasis on professional and ethical business practices.

Caring Voice Coalition
Pam Harris, President
8249 Meadowridge Rd
Mechanicsville, VA 231160
pam.harris@caringvoice.org
888-267-1440
www.caringvoice.org

Pulmonary Fibrosis Association (1996-2003)
The Pulmonary Fibrosis Association ceased operations in June, 2003. Substantially all of their services are now available directly through the Coalition for Pulmonary Fibrosis

The Pulmonary Paper
This nonprofit organization publishes a newsletter with the latest information on respiratory care and products for people with chronic lung problems.

The Pulmonary Paper
P.O. Box 877
Ormond Beach, FL 32175
(800) 950-3698
www.pulmonarypaper.org

Mary D. Harris Memorial Foundation
The Mary D. Harris Memorial Foundation is a nonprofit organization supporting the efforts to find a cure for pulmonary fibrosis and education initiatives to improve the lives of those living with the disease.

Mary D. Harris Memorial Foundation
1500 Ashbury Street
Evanston, IL 60201
(847) 869-5276

National Coalition for Autoimmune Patient Groups (NCAPG)
The NCAPG and its 25 nonprofit patient advocacy groups works to consolidate the voice of autoimmune disease patients and to promote increased education, awareness, and research into all aspects of autoimmune diseases through a collaborative approach. The NCAPG is chaired by the American Autoimmune Related Diseases Association, the nation’s only organization dedicated to bringing a national focus to autoimmunity as a disease category and supporting collaborative research in order to find better treatments and a cure for all autoimmune diseases. For more information on AARDA or the NCAPG, please visit www.aarda.org or call

NCAPG
Kathy Hammitt
www.aarda.org
22100 Gratiot Avenue
Eastpointe
East Detroit, MI 48021-2227
(888) 856-9433

Second Wind Lung Transplant Association
The Second Wind Lung Transplant Association is a non-profit membership organization founded in 1995 to improve the quality of life for lung transplant recipients, lung surgery candidates, people with related pulmonary concerns and their families. Second Wind also organizes an Annual Education Conference bringing in many world-renowned surgeons, healthcare professionals, and participants striving to educate and support the growing numbers of lung transplant recipients and candidates. For more information, or to access Second Wind programs and services, please visit www.2ndwind.org.

Contact:
Tom Archer, President
Second Wind Lung Transplant Association, Inc.
3440 Halliday Ave
St. Louis, MO 63118
(314) 664-6360
tea3440@sbcglobal.net
For information on how to join the CPF, click here.

Genetic Alliance
The Genetic Alliance increases the capacity of genetic advocacy groups to achieve their missions and leverages the voices of millions of individuals and families living with genetic conditions. As a coalition of hundreds of genetic advocacy organizations, health professionals, clinics, hospitals and companies, Genetic Alliance is at the crossroads of the genetics community.

Contact:
Sharon Terry, President & CEO
Genetic Alliance
4301 Connecticut Ave. NW, Ste. 404
Washington, DC 20008
(202) 966-5557 or
info@geneticalliance.org
Hours: 9am - 6pm EST

Board of Directors

Scientific Advisory Board

Harold R. Collard, M.D.. ~ Bio
Assistant Clinical Professor of Medicine
Coordinator, Interstitial Lung Disease Program
University of California San Francisco

Serpil C. Erzurum, M.D. ~ Bio
Director, Lung Biology Program
Cleveland Clinic Foundation

Adaani Frost, MD ~ Bio
Professor of Medicine
Baylor College of Medicine
Houston, TX

Marilyn K. Glassberg, MD ~ Bio
Assistant Professor of Medicine
Division of Pulmonary & Critical Care Medicine
University of Miami/Jackson Memorial Hospital

Jeffrey Golden, MD ~ Bio
Medical Director, Lung Transplantation
Director, Interstitial Lung Disease Clinic
UCSF

Kevin O. Leslie, M.D. ~ Bio
Consultant
Professor of Pathology
Mayo Clinic
Scottsdale, AZ

James E. Loyd, M.D. ~ Bio
Medical Co-Director, Lung Transplant Program
Medical Co-Director, FLOLAN Program for Primary Pulmonary Hypertension
Vanderbilt University Medical Center

Fernando J. Martinez, M.D. ~ Bio
Associate Professor, Division of Pulmonary and Critical Care Medicine
Director, Lung Volume Reduction Program
Medical Director, Pulmonary Diagnostic Services
University of Michigan Medical Center

Maria Padilla, M.D. ~ Bio
Associate Professor of Medicine
Director of the Advanced Lung Disease Program
Mount Sinai Medical Center

Ganesh Raghu, M.D. ~ Bio
Professor of Medicine, University of Washington
Chief of Chest Clinic
Director, Lung Transplant Program and Interstitial Lung Disease Program
University of Washington Medical Center, Seattle, Washington

Glenn Rosen, MD ~ Bio
Associate Professor of Medicine, Division of Pulmonary & Critical Care
Co-Director, Stanford University Lung Disease Center
Stanford University Medical Center

Cecelia M. Smith, D.O. ~ Bio
Medical Director
Reading Hospital & Medical Center
West Reading, PA

Strategic Advisory Board