Research
Advocacy
About Us
Join the CPF

          

The CPF Serves as a National Voice for the IPF Community

"Make Your Voice Heard by Joining the CPF's Campaign ACT Today!"

The ACT campaign relies on the participation of patients, their families, and all those that are affected by IPF, and is supported by each of the CPF's five nonprofit partners. By joining the ACT campaign, you will become part of an army of volunteers who will contact Congress, national health policymakers and the media to educate them about IPF. Every other month members will receive the CPF's ACT Action Alert, a newsletter detailing the advocacy efforts and outlining ways for you to help.

Continue your fight against IPF and join the ACT campaign. Your efforts can make a difference, and your participation is critical to our success.

"I am full of energy for this cause. I feel as if I have just planted several small, young trees on Capitol Hill, and over the next many years they will grow into a nice big canopy of protection, comfort and love for the generations of IPF patients and their families to come."
-Bill Rhodes, CPF member & IPF patient delegate to Washington, DC

Simply sign up here and become part of the ACT campaign today!

View the CPF Action Alert National Newsletter here:
2008: February .pdf
2007: January .pdf  |  May.pdf  |  August .pdf  |  December .pdf
2006: January .pdf  |  June .pdf  |  September .pdf  |  December .pdf
2005: January .pdf  |  June .pdf  |  September .pdf  |  December .pdf
2004: January .pdf  |   April .pdf  |   September .pdf  |  December .pdf  
2003:  April/May .pdf  |   July/August .pdf  |   September .pdf  |   December .pdf


The following campaigns are currently being supported by CPF. Please help CPF advance these important initiatives!

September 27, 2007 - The National Idiopathic Pulmonary Fibrosis Awareness Week Observed

August 30, 2007 - Coalition for Pulmonary Fibrosis Launches Aggressive Ad Campaign Directed at United States Congress

July 13, 2007 - Congressman Baird Works to Raise Awareness of Pulmonary Fibrosis

April 18, 2007 - CPF Signs On to Medicare Rights Center Letter to Congress Asking for Elimination Medicare 24-Wait Period Act

April 16, 2007 - Respiratory Care Leadership and CPF Express Patient Access Concerns Over CMS Final Rule on Competitive Bidding for Home Oxygen Therapy

February 14, 2007 - Congressman Norwood, IPF Patient & Advocate, Was Inspiration, Help to Pulmonary Fibrosis Sufferers

August 23, 2006 - CPF Announces 2006 National IPF Awareness Week Activities For Week of September 25 – October 1

June 30, 2006 - Long Negotiations Lead to Senate Considering a Trio of Stem Cell Research Bills

June 9, 2006 – Letter to Senate Finance Committee Calls for Hearing on Medicare 24-month Wait Period Act

05/01/06 - Sen. Diane Feinstein Sends Letter of Support to CPF
Recently, United States Senator Diane Feinstein (D - California) wrote the CPF to express her support for the CPF's efforts to improve awareness, education and research efforts in pulmonary fibrosis! Click Here to view her letter of support.

02/07/06: Proposed Legislation Would Affect IPF Patients’ Costs for Oxygen

1/11/06: Click Here to View Floor Debate of House Resolution 178!


 

2005 Advocacy Programs

2004 IPF Awareness Week Raises More than $110,000 for IPF; CPF Works to Build Partnerships on Capitol Hill

2004 IPF Awareness Week Accomplishments

CPF 2004 National IPF Awareness Week Activities

Click Here For Photos of 2004 IPF Awareness Week Activities

 

All registered trademarks and trademarks that appear in this Web site are the property of their respective owners.
©2001 - 2008 Coalition for Pulmonary Fibrosis
Webmaster | Information
Last Updates July 24, 2007

We subscribe to the HONcode principles of the HON Foundation. Click to verify.   
We subscribe to the HONcode principles. Verify here.