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2003 Awareness Week Accomplishments
CPF Procures 18 State Proclamations as Part of 2003 National IPF Awareness Week
Coalition for Pulmonary Fibrosis Launches National Idiopathic Pulmonary Fibrosis (IPF) Awareness Week October 5-11, 2003
National Heart, Lung and Blood Institute (NHLBI), Centers for Medicare and Medicaid Services,
Leading Pulmonary Experts to Participate in Kick-Off Patient Event Sunday, October 5
8/25 National IPF Awareness Week Press Release
October 5 Patient Event Agenda
October 5 Patient Event Flyer
The Coalition for Pulmonary Fibrosis has established National IPF Awareness Week to be held in Washington, D.C., during the second
week of October. The goal of IPF Week is to heighten awareness of IPF within the congressional community and federal agencies.
CPF members will accomplish this by meeting with congressional representatives and staff in person, on Capitol Hill and in their home
districts, and by contacting them by telephone, letters and email. CPF members are also requesting state proclamations for IPF Week,
and the CPF will conduct media outreach to educate the general public about IPF and the rising prevalence of the disease.
IPF patients and families from around the country will make their way to Washington D.C. to meet with members of Congress on Capitol
Hill on Monday and Tuesday, October 6-7.
The CPF will also drive efforts at the local level through coordinated activities with IPF support groups and patients, families and
physicians in cities across the country. Local level activities to promote IPF Awareness Week include: state proclamations,
announcements at support group meetings, videotape and email messages to congressional representatives and media outreach to local media
outlets.
We encourage all CPF members to become involved in the National IPF Awareness Week efforts. If you are interested in coming to
Washington, D.C. for Capitol Hill visits, please contact Mark Shreve at 888-222-8541 or info@coalitionforpf.org.
If you're not able to make the trip to Washington, D.C., there are many ways you can participate in National IPF Awareness Week.
These include:
- Call or write members of Congress. For information on contacting your representatives in Washington and other key lawmakers please
visit our Web site's ACT section at: www.coalitionforpf.org.
- Submit a state proclamation request to your governor or write a support letter for those states where a proclamation has already been
submitted (see listing in left column).
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Reach out to your local media. For a CPF member media tool kit, please contact Marta Fraboni at 952-346-6348 or email
mfraboni@webershandwick.com.
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Bring information about National IPF Awareness Week and the ACT campaign to your next local support group meeting.
- Videotape a message to your Congressional representatives.
About the Coalition for Pulmonary Fibrosis
The Coalition for Pulmonary Fibrosis (CPF) is a 501 (c) (3) non profit organization, founded in 2001 to further education,
patient support and research efforts for pulmonary fibrosis, specifically idiopathic pulmonary fibrosis (IPF). The CPF is
governed by the nation's leading pulmonologists, individuals affected by pulmonary fibrosis, medical research professionals and
advocacy organizations. The CPF's partners include the Mary D. Harris Foundation, The Pulmonary Paper, the Pulmonary Fibrosis
Associations, the Caring Voice Coalition, Second Wing Lung Transplant Association, and leading medical and research centers nationwide.
To reach the CPF, please visit www.coalitionforpf.org or call 888-222-8541.
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