“When a treatment or a cure comes, the CPF will be involved. I feel strongly that the CPF is the most likely vehicle that will lead to hope for IPF patients and researchers in the United States,” to quote Dave Steffy, a major supporter of the CPF who would like others to follow his lead in supporting the foundations’ work. “Be a fearless warrior for the cause. The way to be a warrior is to ask people to support the CPF.”
The CPF relies on funds from the community to provide its research funding and patient services. Please help us serve our patients and continue our efforts to stop this dreaded disease. Importantly, more than 90 cents of every dollar contributed goes directly to funding patient services and IPF research, making the CPF one of the most efficiently operated nonprofit organizations in the U.S.
Your gift guarantees that the CPF can be fully responsive to every patient, helps emerging research into treatments and cures, and supports the education of patients, caregivers and physicians on issues around IPF.
There are several ways you can support the important work of the CPF:
The CPF relies on the contributions of individuals, corporations, and associations who share our commitment to improving awareness and education of IPF. The CPF is a 501c3 public benefit corporation, and as such, all contributions are tax deductible to the fullest extent allowed by Federal law.
CPF programs and services are meeting unmet patient and clinical research needs throughout the country, and your contribution will allow us to extend those services into new communities. Our services include patient seminars, support groups, educational materials for patients and healthcare professionals, national patient advocacy programs, referrals for second opinions, patient and family counseling services, insurance education and support, patient mentoring, access to benevolence programs nationwide, and hospice referrals.
Should you wish to make a tax-deductible contribution to the CPF, we encourage you to send your check or money order to:
Coalition for Pulmonary Fibrosis
If requested, a notice to the family will also been sent on your behalf. Please include the full name and address of the person(s) you would like to have notified of your gift.
The CPF can accept marketable securities gifts through our financial advisors at Morgan Stanley. The gift of a financial instrument (stock or bond) allows the donor to make a gift for the full value of the instrument without incurring any transaction costs or recognizing any taxable gain- and apply that value in the preparation of their tax planning. Restricted stock gifts can also be accepted by CPF taking custody of Rule 144 restricted securities and process the legend removal and sale of those securities with the same results as above (or private equity until such time as there is a monetization event).
Charitable Trusts: How can they help you in planning for your future?
Charitable Trusts; the Charitable Remainder Trusts (CRUT, CRAT, NIMCRUT) and the Charitable Lead Trust, are valuable planning tools that help families effectively support their favorite charity, save on taxes, increase cash flow, and manage an estate plan. These Trusts are vehicles to which we can make an asset gift, have that gift restructured, benefit from that restructuring and significantly support a worthy cause.
Congress created Charitable Trusts as wealth transition planning tools, as irrevocable vehicles to help avoid immediate capital gains tax on the sale of highly appreciated assets, increase spendable income from unproductive investments, and diversify concentrated assets, as well as provide for wealth transfer. Gifts to a Charitable Trust may also qualify for a current year charitable income tax deduction and reduce estate tax liability.
The Charitable Remainder Trust (and its variations) allows the grantor to gift a concentrated stock position (or other asset) to the Trust and take a federal income tax deduction on the present value of that gift – even if the cost basis was near zero. The Trust, as a non taxable entity, can then sell the asset gift and restructure the assets. Income from the investments in the Trust is dispersed to the grantor (and designated beneficiaries) for the life of the Trust (an IRS schedule is used to factor the amount of the distribution to insure the original gift meets charitable gift tax deduction requirements). At a triggering event (the death of the grantor or designated beneficiary), the remaining value of the trust is transferred to the designated charity or charities.
In a Charitable Lead Trust, the grantor completes the gift. However, where in the CRT the grantor receives the distribution from the Trust, in the CLT that distribution goes to the charity; and at the triggering event, usually a set number of years, the value of the Trust is distributed back to the grantors estate – or more often to designated beneficiaries as a wealth transfer tool.
There are tests and qualifiers that must be addressed in the establishment of charitable trusts to comply with tax law, which is why it is important to coordinate these tools in your estate planning process with the help of your estate planning attorney.
Should you be interested in establishing a charitable trust benefiting the CPF, please contact your financial advisor directly, or you may contact the CPF at (888) 222-8541 to establish your trust through our financial management partners at Morgan Stanley. Morgan Stanley’s Personal Trust Services can act as your trustee for a variety of different types of trusts, helping donors comply with applicable Acts, Codes, and Fiduciary Obligations.
What is a Charitable Gift Annuity, and how can you take advantage of its features?
Charitable Gift Annuities are life income gifts; you transfer assets now, receive a charitable deduction for a portion of the transfer, and you or a beneficiary receives income for the rest of your life or a fixed period of time. Importantly, you have provided financial resources to the charity of your choice to help accomplish the objectives of that organization.
Capital gifts as well as cash gifts are eligible for contribution; and with a capital gift with a highly appreciated value, the donor can make a significant contribution with a minimal original cost. The charitable deduction is typically valued at is current market value, not the original cost of acquisition; and the capital gain on the gift can be structured to be distributed out over the life payment of the annuity minimizing a big initial tax liability.
With a Charitable Gift Annuity; in exchange for the gift made to the charity, the charitable institution guarantees a stream of income, either immediately or deferred which can continue for the life of the donor.
Let’s look at an example to illustrate how this works. David, 75, decides to give $10,000 for a CPF gift annuity agreement. The payment rate for his age is 7.3%. He can receive a payment each year of up to $730 for life and a tax deduction near $3,800 for the year of the gift. Additionally, about 66% of each annual payment is received tax free for a scheduled number of years. There are some additional consideration for a capital gift which should be discussed with your tax planner.
The Charitable Gift Annuity is a tool in the estate planner’s bag to help clients develop and manage their estate and philanthropic plans, and as such, it is important to coordinate this tool, as in all financial tools, with your estate, financial and tax advisors.
Should you be interested in establishing a charitable gift annuity benefiting the CPF, please contact your financial advisor directly, or you may contact the CPF at (888) 222-8541 to establish your annuity through our financial management partners at Morgan Stanley. Morgan Stanley’s Personal Trust Services can act as trustees for a variety of different types of programs, helping donors comply with applicable Acts, Codes, and Fiduciary Obligations.
The CPF established the Legacy Leader estate planning campaign in early 2006. The Legacy Leader campaign is perhaps the most important fundraising campaign we’ve ever introduced, and a campaign that is important to all those affected by IPF.
Researchers have yet to identify a known cause of IPF and there are no FDA-approved treatments. Physicians have referred to IPF as ‘a fate worse than cancer’: approximately 83,000 patients suffer from IPF and the median survival rate is just 3-5 years. As a CPF member, you know our mission is to quickly and effectively respond to the enormous need for resources and support services for patients, to improve diagnosis and treatment standards for physicians, to increase public awareness of IPF, and to increase funds for research to discover a cure.
It goes without saying that all of us at the CPF fully understand that this important work must continue far beyond your and my lifetimes. For that reason, we must increasingly rely upon estate gifts to sustain the mission of the CPF. That is why your commitment to become a Legacy Leader would mean so much to us, and why we would be so deeply appreciative for your participation.
Legacy Leaders are special supporters who remember the Coalition for Pulmonary Fibrosis in the creation of their wills or through other estate gifts, thereby securing the future of our mission of assisting all those affected by idiopathic pulmonary fibrosis (IPF) through education, support, advocacy, and research funding.
To date, more than 20 CPF members have agreed to participate in the CPF Legacy Leader campaign.
Those who join the Legacy Leaders are listed in our newsletter and on our website, thereby commemorating their participation while also serving as an example for others to follow their lead.
If you have already made, or intend to make, a bequest or other form of estate gift to the CPF, we would like to gratefully welcome you as a fellow Legacy Leader. Please download and complete our Enrollment Form and return it to the address provided at your earliest convenience.
If you would like to consider joining the Legacy Leaders or have specific questions about participation, please contact Mishka Michonat (888) 222-8541 or by email at firstname.lastname@example.org for more information.
Through your generous contributions, the CPF will continue to provide valuable resources to more than 128,000 IPF patients, caregivers and families, and the healthcare professionals who treat them. If you have any questions about your contribution to the CPF, or if you would like to make a restricted donation to advance a specific CPF research or educational program please contact us at 888-222-8541.
2012 Audited Financial Statements