ACT

"Make Your Voice Heard by Joining the CPF's Campaign ACT Today!"

Simply sign up here and become part of the ACT campaign today!


The CPF's campaign ACT (Ask. Challenge. Take Action!) is a national advocacy campaign coordinated by the CPF to unify the voice of our patients and physicians in Washington D.C. The CPF regularly advocates for increased federal funding for pulmonary fibrosis and for legislation in Congress that is important to the community we serve.

The ACT Campaign relies on the participation of patients, their families, and all those that are affected by the IPF, and is supported by each of the CPF's five nonprofit partners. By joining the ACT campaign, you will become part of an army of volunteers who will contact Congress, national health policymakers and the media to educate them about the IPF. Every three months members will receive the CPF's ACT Action Alert, a newsletter detailing the advocacy efforts and outlining ways for you to help.

The CPF partners with the American Thoracic Society for advocacy and to fund important pulmonary fibrosis research.  We share their concern regarding the potential cuts to health research and services and ask that you support their efforts by contacting your Member of Congress.  Please click here to Urge Your Representative to Oppose Cuts to NIH, CDC, and EPA Funding.

July 12, 2011 Pulmonary Fibrosis Research Enhancement Act Re-Introduced in U.S. Congress -Landmark Bill Introduced in Senate and House Would Create National Patient Registry, Increase Public Awareness of Lethal Lung Disease

Click here for News From ATS Hill Day - April 4, 2011

Click here to see the CPF letter to CMS Regarding Pulmonary Rehabilitation Proposed Ruling

Click here to view National PF Awareness Week activities

Click Here to View the Pulmonary Fibrosis Research Enhancement Act>

Click Here to Contact Your Member of Congress Now!

Continue your fight against IPF and join the ACT campaign. Your efforts can make a difference, and your participation is critical to our success.

"I am full of energy for this cause. I feel as if I have just planted several small, young trees on Capitol Hill, and over the next many years they will grow into a nice big canopy of protection, comfort and love for the generations of IPF patients and their families to come."
-Bill Rhodes, CPF member & IPF patient delegate to Washington, DC

Simply sign up here and become part of the ACT campaign today!


CPF Action Alert Newsletter Archive
2011
Winter PDF Download Word Download
Sprn/Sum PDF Download Word Download


2010
May PDF Download Word Download     September PDF Download Word Download     Fall 2010 PDF Download Word Download    
2009
March PDF Download September November PDF Download Word Download

2008
February PDF Download June PDF Download August PDF Download December PDF Download Word Download
2007
January PDF Download May PDF Download August PDF Download
December PDF Download
2006
January PDF Download June PDF Download September PDF Download December PDF Download

CPF Action Alert Newsletters 2003-2005

get acrobat reader You must have Adobe® Acrobat® ReaderTM to download these files. For a free copy of Adobe Acrobat, click here.

Recent IPF News on Capital Hill

February 19, 2009
Pulmonary Fibrosis Research Enhancement Act of 2009 Introduced in 111th U.S. Congress

November 15, 2008
CPF Joins Medicare Rights Center in Collaborative Effort to Overturn the Medicare 24-Month Wait Period for People with Disabilities

November 10, 2008
Co-Sponsorship of Pulmonary Fibrosis Research Enhancement Act Increases to 27 Members of Congress

September 22, 2008
CPF Patient Advocates Meet With 50 Congressional Offices During IPF Week, Urge Support of Landmark Pulmonary Fibrosis Bill

July 22, 2008
Pulmonary Fibrosis Research Enhancement Act of 2008 Introduced in U.S. Congress

July 16, 2008
Senate Passes Key Medicare Bill that Includes Pulmonary Rehabilitation Coverage Provision and Repeals Key Home Oxygen Statute

June 14, 2008
CPF Publishes 2nd Quarter, 2008 Action Alert Newsletter

June 11, 2008
Rep. Brian Baird (D- WA) Discusses Pulmonary Fibrosis Research Enhancement Act of 2008 with KPOJ radio (Portland, OR

April 25, 2008
Genetic Information Nodiscrimination Act (GINA) Passes Congress

March 15, 2008
CPF Joins ATS on Capitol Hill to advocate for Lung Disease Issues

October 16,2007
Rep. Mike Castle (R-DE) Publishes Letter to the Editor in Support of Work of CPF

September 27,2007
2008 National IPF Awareness Week to be Held September 7-13, 2008

August 30, 2007
Coalition for Pulmonary Fibrosis Launches Aggressive Ad Campaign Directed at United States Congress

July 13, 2007
Congressman Baird Works to Raise Awareness of Pulmonary Fibrosis

April 18, 2007
CPF Signs On to Medicare Rights Center Letter to Congress Asking for Elimination Medicare 24-Wait Period Act

April 16, 2007