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Recent IPF News & Announcements

News Archive:  2010  2009  2008  2007  2006  2005  2004  
 
December 31, 2008 Coalition for Pulmonary Fibrosis Celebrates Landmark Year for Awareness, Advocacy, Research
December 30, 2008 Idiopathic Pulmonary Fibrosis Triples Vascular Risk
December 23, 2008 Family of Doctors Joins To Fight Lung Disease That Claimed One of Their Own
December 22, 2008 Researchers Identify Gene Linked to Inherited Form of Fatal Lung Disease
December 04, 2008 Pulmonary Fibrosis Contributes to Beloved Civil Rights Writer and Folk Singer Odetta’s Death
November 15, 2008 CPF Joins Medicare Rights Center in Collaborative Effort to Overturn the Medicare 24-Month Wait Period for People with Disabilities
November 10, 2008 Co-Sponsorship of Pulmonary Fibrosis Research Enhancement Act Increases to 27 Members of Congress
October 28, 2008 NIEHS Study Finds Healing Process Found to Backfire in Lung Patients
A mechanism in the body which typically helps a person heal from an injury, may actually be causing patients with idiopathic pulmonary fibrosis (IPF) to get worse.
October 28, 2008 CPF Publishes 4th Quarter, 2008 Action Alert Newsletter
October 24, 2008 Family Honors Peggy Betts with Benefit to Help Cure IPF, Raising $10,000
October 22, 2008 CPF Fall Fundraising Campaign Raises More than $500,000 to Benefit Patients and Researchers Fighting Pulmonary Fibrosis
Events in Malibu, CA, Chicago, IL, and Rockville, MD Demonstrate Unwavering Support for PF Community
October 16, 2008 InterMune Reports Japanese Regulatory Approval of Pirfenidone in IPF
Provides Progress Report on InterMune Phase 3 CAPACITY Program - - Reports 97% patient retention rate in CAPACITY
October 09, 2008 Congressman Kirk to Give Keynote Speech, Hope to B.I.G. Ball Attendees about Disease That Claimed His Father
Congressman to Present at 3rd Annual Breathing Is Glorious! (B.I.G.) Ball at Renaissance Chicago Hotel October 11th
October 09, 2008 Parents Host Golf Tournament to Fund Cure for Disease That Claimed Daughter’s Life
Lisa Sandler Spaeth Memorial Golf Tournament to be held at Woodmont Country Club on Oct. 14
October 01, 2008 Hopkins Researchers Identify Shortened Telomeres in patients with IPF
Previous Hopkins study identified shortened telomeres occurring in familial PF cases; new study demonstrates it also occurs in patients with no family history of PF
September 29, 2008 2008 Butterfly Garden Party Raises $150,000 for CPF
September 22, 2008 CPF Patient Advocates Meet With 50 Congressional Offices During IPF Week, Urge Support of Landmark Pulmonary Fibrosis Bill
Efforts Double the Number of Co-Sponsors of Pulmonary Fibrosis Research Enhancement Act of 2008
September 04, 2008 Former Utah Governor, An IPF Patient, Joins CPF For Sixth Annual National IPF Awareness Week
Awareness Week is September 7-13
August 12, 2008 CPF Publishes 3rd Quarter, 2008 Action Alert Newsletter
August 11, 2008 Gilead to Initiate Phase III Clinical Trial of Letairis in IPF
July 31, 2008 Exploratory Study of Enbrel (etanercept) in IPF Shows Possible Reduction in Progression of Disease
July 22, 2008 Pulmonary Fibrosis Research Enhancement Act of 2008 Introduced in U.S. Congress
Landmark Bill Would Create National Patient Registry, Increase Public Awareness of Deadly Lung Disease
July 16, 2008 Senate Passes Key Medicare Bill that Includes Pulmonary Rehabilitation Coverage Provision and Repeals Key Home Oxygen Statute
July 14, 2008 Study Finds Sleep Quality Impacts Quality of Life for IPF Patients
June 27, 2008 ALA Report Finds Lung Disease Mortality Rates Increasing
June 23, 2008 CPF Chairman Marvin Schwarz, MD Discusses IPF Research with BioWorld Today Reporter
Rare Pulmonary Fibrosis may Have Blockbuster Potential By Catherine Hollingsworth, BioWorld Today
June 14, 2008 Rep. Brian Baird (D- WA) Discusses PF Research Enhancement Act of 2008 with KPOJ radio (Portland, OR)
June 13, 2008 Cindy Chandler turns Grief into Celebration of Husband’s Life, Raising $30,000 to Help Others Fight PF
June 11, 2008 CPF Publishes 2nd Quarter, 2008 Action Alert Newsletter
June 03, 2008 2008 National IPF Awareness Week to Be Held September 7-13
Meet with Congressional Members in Your District, Write Letters, Hold a Local Event to Celebrate IPF Week and Spread the Word about IPF
May 21, 2008 Coalition for Pulmonary Fibrosis and American Thoracic Society Continue Research Partnership Through 2010
CPF and ATS to Jointly Award $200,000 in research funding
May 19, 2008 InterMune Initiates Roll-Over Study of Pirfenidone in IPF
May 19, 2008 Pirfenidone Gets Fast-Track Designation From FDA
May 18, 2008 CPF Chairman Marvin Schwarz, MD Receives Top Honor from American Thoracic Society
May 17, 2008 Son Raises Funding for CPF While Cheering on Transplanted Father, Spreading Hope to Others Suffering
May 12, 2008 Pipex Pharmaceuticals Receives FDA Orphan Drug Designation for Oral TTM for IPF
One-Year Phase I/II Clinical Trial in Refractory IPF Patients Already Completed by Leading IPF Clinical Research Group
April 25, 2008 Genetic Information Nondiscrimination Act (GINA) Passes Congress
March 15, 2008 CPF Joins ATS on Capitol Hill to Advocate for Lung Disease Issues
February 27, 2008 University of Minnesota Researchers Find Lung Transplant Survival, Major Complications Not Affected by Use of New Lung Allocation Scoring (LAS) System
February 20, 2008 CPF Publishes 1st Quarter, 2008 Action Alert Newsletter
February 19, 2008 Coalition for Pulmonary Fibrosis and National Jewish Medical and Research Center Collaborate to Provide Genetic Counseling for Familial Pulmonary Fibrosis Patients
Genetic Counseling, Medical Information, and Support Program First of its Kind in U.S.
January 28, 2008 Pulmonary Fibrosis Patients/9/11 Responders Represented at State of the Union Address for Second Year in a Row
Deadly Lung Disease Claims as Many Lives Each Year as Breast Cancer, Yet Largely Unknown
January 22, 2008 Coalition For Pulmonary Fibrosis and American Thoracic Society Awards $100,000 Pulmonary Fibrosis Grant to Massachusetts General Hospital Researcher
CPF and ATS Jointly Fund Two-Year Study Investigating Key Trigger of Lung Injury
January 21, 2008 CPF Appoints Mishka Michon Chief Executive Officer
January 18, 2008 Hollywood Takes Notice of Little Known Deadly Lung Disease
Recent Deaths of Well-Known Celebrities, Hit TV Shows Help Spread the Word About Pulmonary Fibrosis
January 18, 2008 Rare Lung Disease Cells Indicate Higher Mortality Risk

 
 
 
 

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