|IPF Research Overview|
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The CPF Research Fund
The primary research challenge is that current investigational therapies are widely considered to be treatment to alleviate symptoms of IPF or to slow the natural, unrelenting progression of the disease, thereby extending survival. No current investigational therapy however, is viewed as a potential cure. As a result, there are myriad areas of research that require the attention of researchers and our funding to effectively advance efforts to find a cure for IPF. ; In late 2002, the CPF established its Research Fund with a goal of funding emerging approaches to understanding, treating – and ultimately curing – IPF. The Fund also aims to advance medical education of IPF to improve detection, diagnosis and treatment standards in the physician and healthcare community. This Fund was established in direct response to the need in the research community to obtain funding to advance new approaches to understanding, treating, and ultimately curing IPF. It continues to offer annual support to researchers whose approach promises to further our understanding of the disease and how treatments can change its course.
The success of any research program depends on patient enrollment in drug trials. Every treatment or cure developed has relied on the participation of patients in the 3 phases of trials. The CPF cannot stress enough how critical patient enrollment is to the future of treatment of PF and we encourage members to discuss the options available with their physician.
To meet this challenge the CPF focuses its research initiatives in the following areas:
To date, the CPF Research Fund has invested more than $2,000,000 in research and professional education efforts to improve clinical understanding of the disease and improve the standard of care for its treatment while awarding more than $395,000 in research gifts to leading medical centers in the United States. In 2006, the CPF also announced a groundbreaking partnership with the American Thoracic Society (ATS) of its first jointly funded multiple two-year, research gifts. Since that initial collaboration, the CPF has funded 8 grants to newly emerging approaches to PF treatment and has also made smaller grants based on the excellence of performance by specific centers around the country.
Education of the medical community on the epidemiology and pathology of IPF remains a challenge. In fact, the CPF’s Basic Research Questionnaire found that:
To help improve the education of medical professionals at all levels, the CPF has funded initiatives: produced data around patient experiences with PF; developed a guide for physicians; gathered material reviewing the treatment options for PF patients; and developed a campaign to share the word about PF and its impact.