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How can I get on a lung transplant list?
Discuss lung transplantation with your doctor — s/he will help you through the process of getting on a list and selecting a center. Other resources include the following:
- Second Wind, an organization dedicated to lung transplant recipients, lung surgery candidates, people with related pulmonary concerns and their families.
- International Guidelines for the Selection of Lung Transplant Candidates, developed by the American Society of Transplant Physicians, American Thoracic Society, European Respiratory Society and International Society for Heart and Lung Transplantation
- "The Lung Transplantation Handbook (Second Edition): A Guide For Patients" by Karen A. Couture.
To purchase this book click here.
How can I participate in a clinical trial?
A Phase III clinical trial for ACTIMMUNE® (Interferon gamma-1b) is currently under way - and is the only clinical trial for IPF at this time. Unfortunately, the trial is now closed. To learn more about ACTIMMUNE, click here.
What other resources for education and support are available to IPF patients and family members?
American Lung Association
American Thoracic Society
Chronic Lung Disease Forum
Huff n Puff Online Forum
International Society for Heart and Lung Transplantation
National Heart, Lung, and Blood Institute
Pulmonary Fibrosis Association
The Pulmonary Paper
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