Sample letter for state proclamation.
Date
The Honorable Governor ___________
Attn: Proclamation Office
Address
City, State, Zip
Dear Governor ________:
I am writing this letter to you on behalf of the patients in our state who have Idiopathic Pulmonary Fibrosis (IPF). IPF is a disorder that creates scarring (fibrosis) in the delicate lung tissue of affected patients. This devastating disease progresses quickly, has no cure, and is often misdiagnosed in the early stages. Very often there is no known cause for IPF.
The Coalition for Pulmonary Fibrosis (CPF) initiated a program to have each of the 50 states declare the month of October IPF Awareness Month. Patients are working with the CPF to increase awareness of IPF. We hope that a greater degree of public awareness will lead to early detection, enhanced support services for patients, and greater interest in IPF research.
We will have patients and CPF representatives on Capitol Hill during the week of Sept. 26-Oct. 1 to meet with legislators about two important bills currently in congress that will help IPF patients. The CPF is also kicking off the week by sponsoring a local 5K B.I.G (Breathing is Glorious!) race and fundraising event in Ann Arbor, MI on Sept. 26. Please help our efforts by signing and issuing a proclamation declaring October IPF Awareness Month in our state.
Thank you in advance for your help and support.
Sincerely,
Name
Address
City, State, Zip
Phone number
About the Coalition for Pulmonary Fibrosis
The Coalition for Pulmonary Fibrosis (CPF) is a 501 (c) (3) nonprofit organization,
founded in 2001 to further education, patient support and research efforts for pulmonary
fibrosis, specifically idiopathic pulmonary fibrosis (IPF). The CPF is governed by the nation's
leading pulmonologists, individuals affected by pulmonary fibrosis, medical research
professionals and advocacy organizations. The CPF's nonprofit partners include the
Mary D. Harris Memorial Foundation, The Pulmonary Paper, the Pulmonary Fibrosis Association,
the Caring Voice Coalition, Second Wind Lung Transplant Association, and leading medical and
research centers nationwide.
(You can personalize this letter by relating your association with IPF and briefly telling your story as patient, family member, caregiver, or medical professional)
Sample Resolution
RESOLUTION
WHEREAS, Idiopathic Pulmonary Fibrosis is a serious disorder causing progressive, incurable lung disease; and
WHEREAS, Idiopathic Pulmonary Fibrosis disease progresses quickly, often causing disability and/or death within a
few short years; and
WHEREAS, in many cases there is no identified cause of Idiopathic Pulmonary Fibrosis; and
WHEREAS, 83,000 U.S. citizens are estimated to have Idiopathic Pulmonary Fibrosis; and
WHEREAS, Idiopathic Pulmonary Fibrosis is often misdiagnosed and under diagnosed; and
WHEREAS, a need has been identified to increase Awareness and Detection of this misdiagnosed and under diagnosed
disorder;
NOW, THEREFORE, I, NAME, Governor of the State of NAME, do hereby proclaim October 2004, to be IDIOPATHIC PULMONARY FIBROSIS MONTH
in NAME OF STATE, and to continue and expand education and promote access to quality care and services for all
people affected by Idiopathic Pulmonary Fibrosis.
