A WORD TO CAREGIVERS
Caring for someone who has a debilitating illness can be both physically and emotionally demanding. You are doing your best to ensure that your loved one gets the best possible care-staying informed about potential treatment options and doing all you can at home to make sure his or her day-to-day needs are met. In the process, you need to remember to take care of yourself as well.
You and your loved one may be coping with a great deal of stress and anxiety as a result of your current situation. If you ignore these feelings, they can have a negative impact on your health and well-being. To help reduce the stress in your life, try to get regular exercise and learn some relaxation techniques. You may also want to join a support group or to see a counselor to help you cope with your feelings. The important thing is for both of you to ask for and get the help that you need. There are support groups specifically designed for caregivers-only.
Providing Support to Those in Need
One of the greatest challenges of the medical community is balancing the delivery of quality care to our patients with the need of these same patients for a supportive hand and empathetic ear. The healing and comfort that comes from communications and communion with others dealing with a similar disease or medical condition is well documented and deserved. Support groups and self-help teams are especially important for disorders like idiopathic pulmonary fibrosis (IPF) where answers are so hard to come by.
The CPF is committed to meeting this need by assisting individuals and institutions with the development of support groups around the country. The CPF’s “IPF Support Group Coordinator’s Kit” is available for those interested in starting a local support group. Please contact Teresa Barnes at 888-222-8541, x. 702 or by email at firstname.lastname@example.org to obtain a copy of this valuable tool or click here to download a copy.
New! – Online Support Groups – Click here
Please click on a state to view the support groups for that state – Only states in dark blue have CPF-sponsored support groups – or select from a link below. Support group information is updated when we are notified of any changes so please contact the support group coordinator listed or the CPF 888-222-8541 to confirm meeting dates/location/time